Care of Your MLD Family Member
- this topic is under development - most of these links will take you off-site for now.
- Care of your MLD family member
- Enteral Feeding (including ethics)
- G & J Tubes
- PEG - percutaneous endoscopic gastrostomy tube
- PEJ - percutaneous endoscopic jejunostomy tube
- Picture of J-Tube
- Information - comparisons, issues
- G-Tube Procedure be sure to click on the pictures to enlarge them
or click here if you're a bit squeamish - it shows only the end result -- the outer and inner (from the stomach) views after the procedure is complete. - G-Tube Tips
- G-tube Care
- "Mickey" PEG no dangling tube - just a simple button
- Pictures of changing a G-Tube (scroll about 1/3 of the way down the page)
- problems with G & J tubes
- "Tube Talk" questions & answers
- Reflux & Fundoplication
- Drugs and Metachromatic Leukodystrophy
- Physical Therapy, Scoliosis, etc.
- additional topics and organization underway
