Metachromatic Leukodystrophy Education

MLD Family Conference™ Videos

The following videos are from our June 2009 MLD Family Conference held in Valley Forge Pennsylvania. Scroll down to see videos from our March 2009 Munich MLD Family Conference.

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MLD Family Conference™ Valley Forge - June 2009	Autoselect for Computer & iPhone	Use These Links only if the others fail (loads .wmv files)
Welcome, Doctor & Family Introductions Dean Suhr, President & Co-Founder - MLD Foundation	Click Here	Click Here
MLD-101: Overview, Genetics, & Diagnostic Testing Dr. David Wenger	Click Here	Click Here
PRACTICAL CARE
Understanding Seizures & Spasms Dr. Marc Patterson	Click Here	Click Here
Practical Care Panel - Audience Discussion/Q&A Dr. Maria Escolar, Dr. Julie Hauer, Dr. Marc Patterson	Click Here	Click Here
Legal & Financial Planning Lois Nafziger, Attorney	Click Here	Click Here
Angel Flight - People Flying People in Need presented by Dean Suhr, President, MLD Foundation	Click Here	Click Here
Make a Wish® Foundation Paulette Battenfelder, Regional Executive Director, Philadelphia & Susquehanna Valley	Click Here	Click Here
RESEARCH UPDATES
Clinical Trial Phases Dean Suhr	Click Here	Click Here
Newborn Screening for MLD Dr. Zhang, Genzyme Corp.	Click Here	Click Here
Gene Therapy Hematopoietic Stem Cell Gene Therapy with Lentiviral Vector Dr. Maria Sessa	Click Here	Click Here
Gene Therapy Intracerebral Gene Therapy Dr. Maria Sessa for Dr. Patrick Aubourg	Click Here	Click Here
Enzyme Replacement Therapy Phase I/II Clinical Trial Report & Overview of the proposed Phase II/III international Clinical Trial Dr. Marc Patterson	Click Here	Click Here
Cord Blood Transplantation (Stem Cell Transplants) Dr. Paul Szabolcs	Click Here	Click Here

Click here to learn more about our recent MLD Family Conference in Munich.

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	QuickTime Format			Windows Media Format
MLD Family Conference - Munich 2009	Cable fast	DSL medium	Dial-Up slow	Cable fast	Podcast	iPhone
PRACTICAL CARE
Practical Care for your MLD Affected Loved one
RESEARCH UPDATES
MLD-101: Basic science, genetics and diagnostics
Transplant Therapies: Bone Marrow & Stem Cell Transplants
Enzyme Replacement Therapy: Phase I/II Clinical Trial Report & Phase II/III international Clinical Trial Discussion

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