Compassion Faces of MLD

The Premier Family Resource for Metachromatic Leukodystrophy Information & Support

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Supporting Compassion for families, Awareness, Research, and Education.

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The MLD Family Compassion Fund™ exists thanks to to generous support of donors and partners, like Believing for Bryleigh Foundation, who share our vision of Compassion for MLD affected families.

Family Compassion Fund grants are made to improve the quality of life for a MLD affected loved one and are determined based on need, access to other resources, the number of applications received, the Fund balance, and its anticipated donations.

All applications are reviewed for completeness & clarity, then de-identified and sent to the MLD Family Compassion Fund Review Committee, which consists of 5 independent arms-length reviewers with medical, family, economic and at large perspectives.

Applications are being accepted only for US residents at this time.

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The Compassion Fund is only able to do its good work because of your generous gifts. You may designate "Compassion" when you make your gift. Thank You!

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Supporting Compassion for families, Awareness, Research, and Education.


Other Resources

MLD Family™ - an overview of the support for MLD affected families

Compassion Links


Notes about Compassion Fund Payments

It is generally required that compassion fund payments be made to directly a creditor to pay a bill, medical or other service provider, or other 3rd party, and generally not to the family making the Compassion Fund grant request. This avoids any issues with reporting income or gifts to social service agencies that might lead to a reduction in government service benefits or payments, and it also removes any potential for perceptions about appropriate use of funds.

After grant approval, checks to businesses can be issued as soon as the payee is confirmed. Per IRS requirements, checks to individuals, as occurs often with landlords and those donating their time to a project but needing payment for supplies, first require an IRS Form W-9 be completed and returned to us as a scan or photograph before a check can be issued.


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