COPYRIGHTS

The MLD Foundation's web site, its databases, and the contents thereof are copyrighted by MLD Foundation, all rights reserved. No part of the web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of the MLD Foundation. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (MLD Foundation) and MLD Foundation's copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

(c) Copyright 2005, 2006, 2007, 2008, 2009, 2010

LINKING

Links to the MLD Foundation web site may be made as long as a page is shown in its entirety. No direct linking to pictures and other individual elements is permitted without advance written permission.

Use of small portions, a sentence or two, of the content of this site may be made without advance notice as long as attribution is made to the MLD Foundation. If the use is on another web site an acknowledgement and an active link back to the appropriate page at http://www.MLDfoundation.org is required.

To maintain reference/link and bookmark integrity we try not to change the names of files used for each of our web pages, however we cannot guarantee that they will never change.

TRADEMARKS

The following are trademarks of the MLD Foundation:

MLD Foundation	MLD Family
Faces of MLD	MLD Family Conference
We C.A.R.E.	MLD Family Gathering
The "We C.A.R.E." acronym of "facilitating Compassion, increasing Awareness, influencing Research and promoting Education"
The stylized text with the intertwined butterfly (left), and the standalone butterfly Logo with distinct butterfly graphic of faces in the wings (right). (click image to enlarge)

These logos and trademarks are not to be used for any purpose, private or public, including fundraising for the MLD Foundation or any other cause, without the express advance permission of the MLD Foundation.

We are occasionally asked if the logo can be reproduced in some form for fundraising or other purposes. Permission must be requested in writing, in advance, and may or may not be granted after careful consideration of how the logo is proposed to be used. More details can be found here. If the proposal includes selling an item with some embodiment of the logo as a fund raiser, the details of the fundraiser should also be provided, including any representations as to the tax deductibility of contributions.

NONDISCRIMINATION POLICY

The MLD Foundation does not advocate, support, or practice unlawful discrimination based on age, ethnicity, gender, national origin, disability, race, size, religion, sexual orientation, or socioeconomic background.

We reserve the right to limit access to resources to any person(s) not respecting the values, decisions, ethics, or privacy of others.

WHISTLEBLOWER POLICY

Guidestar and the Sarbanes-Oxley Act require this policy ... If any employee, volunteer, or affiliate [person] of the MLD Foundation reasonably believes that some policy, practice, or activity of the MLD Foundation is in violation of law, a written complaint must be filed by that person with the Executive Director or the Board President. It is the intent of MLD Foundation to adhere to all laws and regulations that apply to the organization and the underlying purpose of this policy is to support the organization’s goal of legal compliance. The support of all persons is necessary to achieving compliance with various laws and regulations. A person is protected from retaliation only if the person brings the alleged unlawful activity, policy, or practice to the attention of the MLD Foundation and provides the MLD Foundation with a reasonable opportunity to investigate and correct the alleged unlawful activity. The protection described below is only available to persons that comply with this requirement. MLD Foundation will not retaliate against a person who in good faith, has made a protest or raised a complaint against some practice of the MLD Foundation, or of another individual or entity with whom the MLD Foundation has a business relationship, on the basis of a reasonable belief that the practice is in violation of law, or a clear mandate of public policy. The MLD Foundation will not retaliate against persons who disclose or threaten to disclose to a supervisor or a public body, any activity, policy, or practice of the MLD Foundation that the employee reasonably believes is in violation of a law, or a rule, or regulation mandated pursuant to law or is in violation of a clear mandate of public policy concerning the health, safety, welfare, or protection of the environment.

DOCUMENT DESTRUCTION POLICY

Guidestar and the Sarbanes-Oxley Act require this policy ... The MLD Foundation acknowledges its responsibility to preserve information relating to litigation, audits and investigations. The Sarbanes-Oxley Act of July 30, 2002, makes it a crime to alter, cover up, falsify, or destroy any document to prevent its use in an official proceeding. Failure on the part of employees, volunteers, or affiliates to follow this policy can result in possible civil and criminal sanctions against the MLD Foundation and its employees and possible disciplinary action against responsible individuals (up to and including termination of employment). Each employee has an obligation to contact the Chair of the Audit and Finance Committee, Executive Director or the Board President of a potential or actual litigation, external audit, investigation or similar proceeding involving the MLD Foundation that may have an impact as well on the approved records retention schedule.

Most documents will be archived electronically with reasonable efforts to back up these archives. Giving records, federal and state tax & corporate documents will be retained at least as long as statutes require. Giving records will be archived in a similar fashion, however, while we normally use a 3rd party merchant processing service to avoid any contact with credit card numbers we occasionally process manual transactions in which case records or the transaction are retained but the credit card number is disposed of (deleted or shredded) as soon as practical and is not archived. The occasional credit card number sent by email may be inadvertently backed up as part of our email archives.

REVISION HISTORY

last revised May 28, 2010 ... added 2010 copyright, addition of graphics and slight modification to text describing the butterfly logo and MLD sytlized text logo with butterfly, minor wording adjustment to pluralize the descriptive use sentence

prior revisions: August 26th, 2009; May 26, 2009; July 2, 2008