Practical Living with MLD ... the practical aspects of day to day life with MLD
1:30
Improving the quality of Life for those affected by MLD and for those caring for loved ones - Topics by audience request
Panel
- Dr. Julie Hauer, Pediatric Palliative & Pain Care Consultant, Boston, MA
- Dr. Eric Levey, Kennedy Krieger Children's Hospital, Baltimore, MD
- Dr. Kendra Bjoraker, PhD Neuropsychology, Colorado Children's HospitalHill Gene Therapy Center
- Dr. Lawrence Charnas - Pediatric Neurologist, University of Minnesota
- additional panels members tbd
3:00
break
3:15
Panel Discussion ...The MLD Journey
A casual, free-flowing, interactive discussion between attending families and the panelists.
- the medical experts
- several local experts
-
and all of the families ...
5:00-5:15
Call to Action - how we can help each other and accelerate a cure
all
5:15 - 6:10
free time
6:10
Hosted Group Dinner (leave hotel at 6:10, dinner at 6:30)
We also wish to thank the individual families for their donations to the scholarship fund.
Questions? Contact Dean Suhr <deansuhr@MLDfoundation.org> +1 503-656-4808, USA: 1-800-617-8387, or FAX +1 503-212-0159
This conference is being organized by the MLD Foundation. Check with your tax advisor about the deductibility of any expenses associated with this conference.