2019 MLD Family Conference™
It's the only MLD-specific conference...
In just 9 days we'll gather in Franklin, Tennessee.
Friday June 28th thru Saturday June 29th
Please join us as we gather families and their MLD affected loved ones along with the world's leading MLD doctors, researchers, scientists, and caregivers for a weekend of fun, education, discussion, friendship, live hugs and an unforgettable time!
All MLD families are invited, whether you currently have an MLD affected loved one or an angel! There will be plenty of group and one-on-one time to meet the other families and the doctors. Leave the weekend with new friends, new knowledge, and practical inspiration & ideas!
Please return to this page on Friday June 28th to see and participate in a live webcast. We will also be livestreaming the MLD Butterfly Release late Saturday morning and the Parade of MLD Champions during the first 30 minutes of Saturday evening's dinner.
AGENDA <-- click to see full agendaLIVESTREAM HOURS:
- Friday June 28th from 9:30 am to 5 pm
- Saturday June 29th from 9:30 am to 5 pm ... We will also livecast the Parade of MLD Champions at 7pm
All times CDT, same as Chicago
We're heading south this year to Tennessee for our 2019 MLD Family Conference™! Join us in historical Franklin, TN – just 20 minutes south of Nashville, home of the Grand 'Ole Opry.
Registration costs are the same as last year. Early registration includes free Thursday night! We'll have plenty of social time, highly-interactive sessions as well as some special breakout sessions!
Check in Thursday and get settled before the conference starts Friday morning.
We urge you to make your travel plans early, especially if you are flying in, to keep travel costs down. The closest airport is Nashville (BNA) with lots of good airline service. Memphis and Chattanooga are under 3 hours with Atlanta, Birmingham, Indianapolis and Cincinnati just a 4-hour drive – another hour reaches St. Louis and Indianapolis.
AGENDA <-- click to see full agenda
Thursday – arrivals
Friday – 9:30 am start – includes light breakfast, lunch and a casual welcome dinner
Saturday – 9:30 am - 5 pm followed by a MLD Family dinner celebration ... includes all meals
Sunday – departures
Click to email us Online registration for this conference closed on Wednesday, May 29. If you would still like to register we will try to accommodate you as best we can. Please contact us via email or at +1 503-656-4808.
LIVE WEBCAST: There will be plenty of space on the free live webcast, which will appear on this page during the conference.
*** We are sorry, due to planning and space constraints we cannot accommodate on-site registration or walk-in attendees. ***
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The working 2019 - Franklin, TN agenda can be seen here.
We will be providing an experienced volunteer staffed respite room for those affected with MLD so you can enjoy the presentations if your loved one needs time to rest or simply wants to have a better time with DVDs, art and other activities. They will be in a room near our meeting room for easy access and your peace of mind. You will be responsible for all medications, feeding, and toileting.
Children and youth must be supervised while at the hotel - either sitting with you in the meeting, supervised by an adult in your room, or participating in our children or youth programs. They cannot roam the hotel or swim unsupervised.
We will again have a structured children's program for all children - both healthy and affected. We have experienced leaders planning two full days of games, art, music and other activities to help the kids enjoy their time, too.
If you express interest and there are enough youth registered, we will try to put together a separate youth program (ages 11 and up).
Our host hotel is the Hilton Franklin - Cool Springs, a 4.5 star (TripAdvisor) hotel located in Franklin, TN
601 Corporate Centre Drive, Franklin TN 37067 ... click for map to the hotel
Check In: 3pm, Check Out: 12pm
The hotel specifies a maximum of 4 people in a king room (3 in the bed plus one in roll-away) or 4 in a double queen room. Rollaways are available only in king rooms. Note: only the queen rooms have tubs.
PLEASE NOTE - DO NOT contact the hotel directly for reservations or special requests, all reservations and requests must be handled directly by MLD Foundation.
Franklin is just 20 minutes from Nashville and home to upscale shopping and southern history. Enjoy the rolling hills of Tennessee, an elevated outdoor heated pool with large terrace and fireplace, and a Precor fitness center.
In the guest rooms, each detail has been designed to create a relaxing environment during your stay. King rooms have oversized desks and showers, while deluxe two queen-bed rooms provide plenty of space and tubs. Each guest room features a 49-inch HDTV, a refrigerator, in-room safe, iron, ironing board, hair dryer and coffeemaker – everything you need to feel at home. Please specify your bed preference during registration. The entire hotel is non-smoking.
We strongly encourage all families, even local families, to stay at the conference hotel. A key aspect of the MLD Family Conference is the casual atmosphere and ability to mingle with other families. Our hotel rooms are underwritten by grants and donations to keep the cost to a minimum.
The conference room rate of $190 has been extended 3 days before and 3 days after the conference if you wish to stay in the area for any extra time.
Your registration includes continental breakfast, lunch & dinner on Friday, ... and breakfast, lunch & dinner Saturday.
Please specify special dietary needs when you register (gluten free, diabetic, vegetarian), and whether child, adult, or no meals are needed.
We try to keep the meals & breaks light and reasonably healthy.
Conference attire is casual. However, while it may be warm and humid outside, hotel meeting rooms can often be cool so please consider a light sweater for the meeting rooms.
Average June highs in Nashville are 86 with average lows of 63 and occasional thunderstorms.
Parking is free for those driving.
If you are flying you will be responsible for transportation costs from your home city to Nashville, TN, which is about 25 minutes (20 miles) away.
If you advise us of your itinerary in advance, we will try to arrange free shuttles to and from Nashville, TN airport.
Experience quintessentially American charm and history when you explore Franklin, TN. Stroll through old Downtown Franklin, where you can visit the Franklin Theatre, Civil War homes, and museums. Visit Cool Springs Galleria Mall, stop by local sports complexes or take a trip to Downtown Nashville, home of great music, the Ryman Auditorium, and the Grand ole Opry, which is only 20 minutes away.
Online Registration closes Wednesday, May 29
Prices are holding constant from last year!
Scholarships are available - see the tab below this one.
|1st adult -
staying at the hotel
Includes first adult and all MLD-affected family members,
2 nights at the hotel
, meals as described above and a conference folder.
|1st adult -
NOT staying at hotel
|$200||Includes first adult & all MLD-affected family members, same as above but does NOT include hotel room.|
||$110||Includes meals as above, and a conference folder.
* Note room occupancy limits in Hotel section, above.
|Guests from for-profit companies
||$800||Includes up to two nights hotel, includes meals as above, and a conference folder.
* Please note ... per conflict guidelines, industry costs are not subsidized and free early-bird night is not available.
(eating adult meals)
|$40||Includes meals as above, supervised youth program (if enough interest is expressed), and access to the children's/respite room.
(eating child's meals)
|$20||Includes meals as above and access to the children's/respite room.
|Infants||free||< 1 year old. Does not include child care or meals.|
|Roll-away beds||$0||(King rooms only) Reserve early to assure availability.|
|Cribs||$0||Reserve early to assure availability.|
|Airport Transportation||Once we know your flight itinerary we will try to arrange free shuttles to and from Nashville, TN (BNA) airport for you.|
Our conference room rate has been extended 3 days before and 3 days after the conference if you wish to stay in the area for any extra time.
Please note that you will be responsible for your own travel arrangements and costs from your home town to Franklin.
Limited travel and conference scholarships will be available for those needing financial assistance. Please go ahead and register. Enter your confidential scholarship request on the bottom of the registration payment page.
Online Registration closes Wednesday, May 29
We want everyone that wants to attend to be able to. If you need assistance with registration or travel expenses please let us know. We will confidentially try to help as best we can.
Please go ahead and register. Enter your confidential scholarship request on the bottom of the registration payment page.
We recognize that life with MLD brings surprises on a schedule you can't always control. However, we have to make firm financial commitments to the hotel for rooms and meals well in advance of the actual conference. Generally, we cannot accept cancellations, however, if you need to cancel please let us know as soon as possible so we can work with you to try an accommodate a refund. We will do our best but the exact refund amount will depend on our hotel contract obligations at the time of the cancellation.
The MLD Family Conference™ is for the benefit of MLD affected families and those providing their immediate support. We restrict attendance to create an atmosphere of intimacy for the families and to keep our focus on MLD. MLD Foundation reserves the right to restrict or deny registration and attendance at MLD Family Conferences to achieve this goal.
Questions? ... Contact Teryn Suhr <Conference-2019TN@MLDfoundation.org> +1 503-656-4808
Thank you to our SPONSORS, DONORS, & GRANT PROVIDERS
Thank you to our generous sponsors and grant providers ( Honoring Olivia, Takeda, Orchard Therapeutics, Homology Medicines, Believing For Bryleigh ) who through their generous support make this conference much more affordable for the attending families.
We anticipate and want to thank in advance the families who individually donated to support of our conference scholarship fund. The MLD Family Conference is not a fund-raiser for MLD Foundation – and you are only paying for a small portion of the direct costs.
2019 TN D-0 O-0