The 2009 Munich MLD Family Conference is over. It was a great success with nearly 60 people representing families and research from across Europe. We have left the Munich overview page up so you can learn more about the conference.
Starting April 18th, you can find details about the June 2009 US MLD Family Conference in Philadelphia here.
We're celebrating the start of 10 years of caring for MLD affected families with our first international MLD Family Conference March 13-14th, 2009 in Munich, Germany.
Please join us as we gather families and their MLD affected loved ones along with the world's leading MLD doctors, researchers, scientists, and caregivers for a weekend of fun, education, discussion, and compassion. There will be plenty of group and one-on-one time to meet the other families and the doctors. We want you to leave the meeting with new friends, new knowledge, and a practical inspiration with ideas to better care for your loved one.
We will be providing a staffed respite room for those affected with MLD so you can enjoy the presentations if your loved one needs time to rest or simply wants to have a better time with DVDs, art and other activities.
Our host hotel is the beautiful and modern four-star Sheraton Schwaig-Oberding conveniently located just 5 minutes south of the Franz Josef Strauss International Airport (Munich, MUC), is Germany's second largest airport, after Frankfurt, with about 34 million passengers a year. The hotel is well equipped for you and your MLD affected loved ones with full accessibility for wheelchairs. Your breaks, lunch Saturday and dinner both Friday and Saturday are included in the modest registration fees. Hotel guests also will enjoy the breakfast buffet. You will be responsible for transportation costs to the Munich airport.
Munich is the capital city of Bavaria and is located just 50km north of the Alps in Southern Germany. We will get a taste of Bavaria at a special dinner Saturday evening at the Erdinger Weißbräu, one of the region's most famous Bavarian style breweries.
A working agenda can be seen here.
Thank you to our grant providers (Shire HGT), sponsors (Mac's Team and Myelin Project) and service provider partners (Boinx Software), who through their support made this conference much more affordable for the attending families. We anticipate and want to thank the families who individually donated to support of our conference scholarship fund. The MLD Family Conference is not a fund-raiser for the MLD Foundation so you are only paying for direct costs.
Registration is now open - After Februrary 12th hotel space cannot be guaranteed and will be on a space available basis. The costs are outlined below. Please note that you will be responsible for your own travel arrangements and costs. Some scholarships will be available for those needing financial assistance.
|1st adult & MLD affected family member - staying at the hotel||
|includes first adult & one MLD-affected family member, two nights at hotel, all breaks and meals from Friday afternoon through Sunday breakfast, and a copy of the conference proceedings|
|1st adult & MLD affected family member - NOT staying at the hotel||
|includes first adult & one MLD-affected family member, all breaks, Friday & Saturday dinner, and a copy of the conference proceedings|
|includes all meals and a copy of the conference proceedings|
|includes meals, access to respite room. See below for rollaway information.|
|includes access to respite room. See below for crib information.|
|Reserve early - the hotel only has 13 rollaway beds (their charge of € 40/night is passed directly to you. We have arranged a discount if the rollaway is used by a MLD child who is not eating a full breakfast)|
|Reserve early - the hotel only has 5 cribs|
|for those driving - not included in conference fees|
Questions? ... Contact Dean Suhr <deansuhr@MLDfoundation.org> +1 503-656-4808
The MLD Family Conference is for the benefit of MLD affected families and those providing their immediate support. We restrict attendance to create an atmosphere of intimacy for the families and to keep our focus on MLD. The MLD Foundation reserves the right to restrict or deny registration and attendance at MLD Family Conferences to achieve this goal.
This conference is being organized by the MLD Foundation. Check with your tax consultant about the deductibility of any expenses associated with this conference.