Featured Clinical Trials:
Enzyme Therapy ... recruiting closed for now, worldwide (except US). Next phase in planning stages.
Gene Therapy ... Phase I/II recruiting complete. Next phase in planning stages. (Milano, Italy)
If you want to know about metachromatic leukodystrophy (MLD), you've come to the right place! We C.A.R.E., we welcome you, and we're glad that you found us!
Often your arrival here comes at a time of great personal trauma due to a recent diagnosis or encounter with MLD. We want you to know that you can count on us for support, information and to help you get connected with others who are also on the MLD journey.
WE C.A.R.E. ...* Compassion will take you to the MLD Family where you can connect with others.
* Awareness is where you will find what is being done to increase knowledge of MLD and how you can help.
* Research updates the latest in efforts to treat and cure MLD.
* Education leads to MLD-101 where you will find a comprehensive, yet very readable, layman's overview of MLD.
The MLD Foundation is a non-profit 501(c)(3) organization and appreciates your generous support. Please check out our Fund-raisers and MLD Stuff in the boxes below:
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2018 Tayah's Fight for MLD April 30th, Australia - online Victor Robotics - Team 1559 April 30th, Victor, NY see past events here |
Newborn Screening – Pilot Study launches Newborn Screening – Policy Presentation Reference Book Recommendation Leukodystrohy Consensus Paper – Follow our Blog– March, 2014 - Learn about our openNHS initiative for Natural History Studies >>More here. February, 2014 - MLD Family Compassion Fund™ launches to support families >>More here. January, 2014 - new MLD Awareness video >>More here.
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