MLD Foundation

Featured Clinical Trials:

Enzyme Therapy ... recruiting ambulatory late-infantiles.

Gene Therapy ... Phase I/II recruiting complete. Phase III in planning.

Intracerebral Gene Therapy ... new March 2013 ... recruiting late infantiles

If you want to know about metachromatic leukodystrophy (MLD), you've come to the right place! We C.A.R.E., we welcome you, and we're glad that you found us!

"... we have a call in to pediatrician and I know she will ask, what advice are you getting on the MLD Family Dicsussion List™? I think that about says it all on how valuable this group is."

Often your arrival here comes at a time of great personal trauma due to a recent diagnosis or encounter with MLD. We want you to know that you can count on us for support, information and to help you get connected with others who are also on the MLD journey.

Keep up to date ...
Sign up for periodic (4-5/yr) MLD Foundation updates via email
by clicking here.

WE C.A.R.E. ...
* Compassion will take you to the MLD Family where you can connect with others.
* Awareness is where you will find what is being done to increase knowledge of MLD and how you can help.
* Research updates the latest in efforts to treat and cure MLD.
* Education leads to MLD-101 where you will find a comprehensive, yet very readable, layman's overview of MLD.

The MLD Foundation is a non-profit 501(c)(3) organization and appreciates your generous support. Please check out our Fund-raisers and MLD Stuff in the boxes below:

Upcoming Events:
Please let us know about your event. and we'll post it here.

2014
AnnaLovisa Benefit ends Feb 1st, UK

see past events here

DONATE NOW!

Supporting research, awareness, and families.

NEW - specify your Memorial or
In-Honor-of gift.

Shopping On-Line?
Please help us raise funds at no cost
to you!

February, 2014 - MLD Family Compassion Fund™ launches to support families >>More here.

January, 2014 - new MLD Awareness video >>More here.

December, 2013 - Shire using new port and now has 5 centers open. >>More here.

Follow our Blog–
The MLD Foundation has a blog - check it out and follow us here.

March, 2013 - Gene Therapy Trial completes recruiting–
The initial cohort of patient recruiting is complete as of March 2013. There is a very limited compassionate access phase underway. >>More here.

European MLD Family Conference™ –
Our next European famly conference has been delayed until spring of 2014 due to funding constraints.

March, 2012 - Shire eliminates no treatment arm in ERT trial. >>More here.

MEDIA

Sept, 2009 - Empowering Our Children radio interview with Christine Hoffman and Dean suhr. Listen here

* NDA = non-disclosure agreement

Sterling Silver Jewelry ==> Click to see more or order
Niobium MLD Butterfly now in 2 sizes! out of stock!	MLD Postage Stamps Click to see more styles!