We C.A.R.E. Faces of MLD

The Premier Family Resource for Metachromatic Leukodystrophy Information & Support

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Supporting Compassion for families, Awareness, Research, and Education.

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MLD Foundation is focused exclusively on MLD. We have four areas of purpose:


Our slogan, "We C.A.R.E." comes from these four areas of purpose.

Two things differentiate MLD Foundation from other MLD and leukodystrophy focused organizations ...

First is that we are specifically focused on MLD in all aspects of our work. Other foundations may support other diseases, related research, or more generally the whole basket of leukodystrophies. MLD Foundation recognizes that MLD research needs to expand to include MLD, not just to hopefully spill over to benefit MLD - hence our purpose to influence research. Along with influencing organizations and existing sources of funds, MLD Foundation does some direct funding of MLD-specific research as well.

Second, is that we are not just a fund-raising "machine" that raises money to fund research. MLD Foundation is actively engaged in the lives of the families suffering with MLD and knows that these families must be supported while we work aggressively towards a cure for MLD.

The Directors have developed a detailed 5-year plan and are facilitating the growth of the organization. As MLD Foundation grows in our base of support - people, talents and resources - we will be able to more aggressively achieve our goals.

The history of MLD Foundation can be found here.


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