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Supporting Compassion for families, Awareness, Research, and Education.
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Where the MLD Family™ Gathers℠
2024 MLD FAMILY CONFERENCE®
June 21-21 in Kansas City, Missouri USA
Click to learn more!
Registration opens April 1st
2024 MLD FAMILY CONFERENCE®
June 21-21 in Kansas City, Missouri USA
Click to learn more!
Registration opens April 1st
If you are seeking to cure MLD or want to know about metachromatic leukodystrophy (MLD), you've come to the right place! We C.A.R.E.®, we welcome you, and we're glad that you found us!
Featured Therapy:
Gene Therapy Approved for pre-symptomatic late infantiles and early juveniles in the US & EU.
Often your arrival here comes at a time of great personal trauma due to a recent diagnosis or encounter with MLD. We want you to know that you can count on us for support, information and to help you get connected with others who are also on the MLD journey.
Newly Diagnosed? We personally know that pain, panic, uncertainty, and urgency ... and we can help! Please call/text/email us ... we have met hundreds of families in person, regularly meet with the key MLD clinicians and researchers. We can inform, guide, and connect you as you plan care for your loved one.
WE C.A.R.E. ... * Compassion will take you to the MLD Family™ pages where you can connect with others.
"... we have a call in to our pediatrician and I know she will ask, what advice are you getting on the MLD Family™ Discussion List? I think that about says it all on how valuable this group is."
* Awareness is where you will find what is being done to increase knowledge of MLD and how you can help.* Research updates the latest in efforts to treat and cure MLD.
* Education leads to MLD-101 where you will find a comprehensive, yet very readable, layman's overview of MLD.
MLD Foundation is a non-profit 501(c)(3) organization and appreciates your generous support. Please check out our Fundraisers and MLD Stuff in the boxes below:
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FDA Approves MLD gene therapy! Newborn Screening – Policy Presentation Reference Book Recommendation Leukodystrohy Consensus Paper – Follow our Blog–
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