Featured Therapies:
Enzyme Therapy ... Phase IIb late infantiles, including the US, is recruiting now! US, EA, SE Asia, S. America)
Gene Therapy ... Now Recruiting late juveniles! Pre-approval access for late infantiles (Milano, Italy)
If you are seeking to cure MLD or want to know about metachromatic leukodystrophy (MLD), you've come to the right place! We C.A.R.E., we welcome you, and we're glad that you found us!
Often your arrival here comes at a time of great personal trauma due to a recent diagnosis or encounter with MLD. We want you to know that you can count on us for support, information and to help you get connected with others who are also on the MLD journey.
* Compassion will take you to the MLD Family where you can connect with others.
* Awareness is where you will find what is being done to increase knowledge of MLD and how you can help.
* Research updates the latest in efforts to treat and cure MLD.
* Education leads to MLD-101 where you will find a comprehensive, yet very readable, layman's overview of MLD.
MLD Foundation is a non-profit 501(c)(3) organization and appreciates your generous support. Please check out our Fundraisers and MLD Stuff in the boxes below:
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Coffee, BBQ, and southern Colorado project cars March 14th, Falcon, CO Please let us know about your event and we'll post it here.see past events here |
MLD Registry - Please Participate! Newborn Screening – Pilot Study launches Newborn Screening – Policy Presentation Reference Book Recommendation Leukodystrohy Consensus Paper – Follow our Blog– March, 2014 - Learn about our openNHS initiative for Natural History Studies >>More here. January, 2014 - new MLD Awareness video >>More here.
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